30 seizures a day: Telford schoolgirl Shania, 11, recovering after brain surgery

It started with one sudden, unexpected seizure but within months Telford 11-year-old Shania Lawrence-Rousseau was having up to 30 each day, leaving her with only one option – radical surgery.

The brave Telford Langley school pupil has had to have the right side of her brain separated or risk her condition becoming more severe.

Now, a month after the surgery, Shania’s mother Tilly said she is slowly but surely building her strength.

Although she is expected to stay at Birmingham Children’s Hospital for at least another four weeks, the family must now start to work out how to alter their home to make it more suitable for Shania’s needs.

It was just before her 10th birthday that she had her first seizure. She had always been healthy and fit but the first attack in January 2016 lasted for about 30 minutes.

"After weeks of tests I asked for her to be referred to Birmingham Children’s Hospital,” mother-of-three Tilly said.

"They confirmed that there was something other than epilepsy. They did the biopsy in September and since then it has been go, go, go.”

The time between the first seizure and diagnosis was terrifying. Shania was having up to 30 seizures a day, and they varied wildly in intensity and symptoms.

"She used to be petrified,” Tilly said.


"It wouldn’t just be one kind. She had as many as seven or eight types of seizures, which made her worry. They were strong or weird. Some of them hurt her.”

Shania was diagnosed with Rasmussen Syndrome, which causes one hemisphere of the brain to become inflamed and deteriorate. The deterioration is irreversible.

The condition is exceedingly rare, affecting only one in 1.8 million people. The only way to stop the seizures, doctors said, was to disconnect the right side of her brain.

But Tilly said there was no choice – without the surgery, she would continue to get worse.


Tilly set up a Facebook page, Shania’s Rasmussen Fight, to help show Shania how much support was out there.

Hundreds of people sent messages to help her make her decision.

In the four weeks since the operation, Shania has already managed to stand, although extensive physiotherapy will be needed.

"I’m very proud of her,” Tilly said. "It’s a long road ahead, but there’s already been mega progress.”

The family is supporting Big Bandage 18, a fundraising campaign for Birmingham Children’s Hospital.

In its fifth year, the Big Bandage campaign is one of the biggest events for the children’s hospital.

A spokeswoman said: "It is only through the kindness, generosity and hard work of our supporters raising these vital funds that we are able to do more and more every year to take us closer to achieving our vision to provide the best possible facilities and environment at Birmingham Children’s Hospital.”

The hospital will use the money to buy equipment, toys and play tools to make the children’s time in hospital easier.

For more information or to sign up to run an event visit bch.org.uk

Date: 14 March 2018 | Source: Shropshire Star

More Telford News

 Tip-off to Telford councillor led to police cannabis raid

Information passed to a Telford & Wrekin councillor led to a cannabis ..

 Trapped badgers rescued from pipe near Newport

Two trapped badgers were to lucky to be found and rescued by the RSPCA aft..

 Pupils steering through challenge as school Stem contest hots up - with video

Budding young inventors have been hard at work as part of the MNA Stem Cha..

 Telford's Got Talent finals: Winner takes it all as duo Intrigue walks away with top prize - with video and pictures

It was winner takes it all when singing duo Intrigue walked away with the ..

 £750,000 virtual reality suite for Telford College

Telford College is taking learning to a new hi-tech level by investing aro..

 Hundreds of new homes to be built as Ironbridge Power Station site sold

The decommissioned Ironbridge Power Station site has been sold, it was ann..
View More

More UK News

Asos to ban silk, cashmere and mohair from its website

The fashion retailer updates its animal welfare policy to say its site will be free of the materials..

Medicinal cannabis use to be reviewed by government

But Home Secretary Sajid Javid says the ban on recreational use of the drug will continue

Ineos loses fracking 'ban' challenge

Petrochemical firm Ineos loses its Court of Session challenge to the "effective ban" on fracking in ..

Missing man's police drone rescue in Norfolk 'a miracle'

Peter Pugh, 75, was found up to his armpits in a muddy creek nearly a day after going missing

Microbead ban: Here are some natural alternatives

As the sale of products with microbeads is banned, skincare experts recommend the best alternatives..
View More

Telford Businesses

Calendar Countdown

[[countdown here]]

Upcoming Events in Telford

14 Jul 2018

8:30am - 6pm

Adult (16 - 64) - £15

Child (5 -15) - £5.00

Senior (65+) - £14.00

Family - £35

View Details

15 Jul 2018

11am - 4pm

Free Entry

View Details

21 Jul 2018

Saturday - 10am - 5pm

Sunday - 10am - 6.30pm

A ticketed charity gala open-air concert in aid of the Severn Hospice, Brass Night of the Proms, will take place on Saturday evening, 9th July from 7.30pm. Compered by BBC Radio Shropshire presenter, Eric Smith, it will feature the Ifton Colliery Band and the Band of the Royal Signals; covered seating will be provided, or bring a blanket and enjoy a picnic on the grass. Please visit the website for more information.

View Details

04 Aug 2018

Practice starts at 4pm on Friday 3 August

Racing starts on Saturday 4 August at 12noon and Sunday 6 August at 10.30am


View Details
View More